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확실한als인지 궁금하네여..

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작성자 권혁준 (124.♡.79.74) 작성일 10-09-11 10:57    조회 6,857회

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천안에사는 루게릭의심환자의 아들입니다
2년전 저의 아버지께서 건강검진후 고지혈수치가 높다하여
약을 처방받아 1년반정도 복용하셨습니다

그러다 작년5월쯤부터 다리에 기운이없다하시며 운동부족인가싶어
그냥 보내다 10월쯤 서울 아산병원 재활의학과 외래 검진을 받았습니다
혹 약물중독이 아닌가 싶어 고지혈증 복용사실을 알렸구여
그곳에서 3개월 지켜보자그러더군여 물론 MRI검사는 했습니다
그렇게 2개월후 다시 아산병원을 찾아서 근전도 검사를 했습니다
다시 3개월 약물중독일수 있으니까 또 지켜보자더군여
약물중독이면 시간이지나면괜찮아질꺼라고 그래서기다리다

올4월 신촌세브란스 신경과로 갔습니다 아산병원자료를가지고여
그런데 교수님 왈 자기가보기엔 루게릭인거같네여 유전자검사하자고
그리고 이병은약도없고 치료도불가능하니 입원치료같은건 권하지않는다고
그리고3개월후에 다시 검사해보자고..

그렇게시간을보내는사이 아버지께선 이제 걷지도못하십니다
저번달엔 누우면 숨이차서 잠을못주무시더군여 그래서 천안단대신경과를갔더니
루게릭이면 지금 손쓸일없다고 호흡기내과로 가라더군여 그곳에서 산소수치와 이산화탄소수치가 않좋다구하더라구여 약처방받아드시던중
지금은 다리가 뼈만남았습니다

그런데여 얼마전부터 헞것이 보이시고 이상한 말씀을 하시고 하시던데 이증세는
병이얼마나 진전된상태일까여?? 참 지금은 말씀도 잘못하십니다
몸두 부들부들떠시구여 숨쉬는것도 힘들어하시구여

저희 가족들은 약물중독이길 바라고있습니다
세브란스병원에서도 말씀만그리한거지 확진을 내린것이 아닌것이기에..
그런데 아버지께선 다포기하신듯 다른병원 검사는 이제 필요없다하시네여

약물중독으로도 이런증세를 보일수 있는건지 궁금하구여? 
ALS맞다면  가족들은 이제 어떤조치를 취해야 할까여??
교수님 답변기다리겠습니다

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