ALS진단후 자문부탁드립니다.
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작성자 주인수 (202.♡.14.115) 작성일 10-03-23 14:48 조회 7,265회본문
하품이나 트림, 가려움증의 정확한 원인은 알 수 없지만, 이 역시 환자의 상태와 관련이 있을 것으로 생각됩니다. 증상에 따라 관련 전문과(소화기내과, 피부과 등)의 진료와 적절한 약물치료가 필요합니다.
마지막 질문인데, 혀가 힘이 없고 말려들어가는 증상은 루게릭병에 의한 구마비(혀의 근육약화) 증상일 수 있습니다. 특별한 치료는 없고 구강을 항상 청결히 유지해야 합니다.
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> 선생님 안녕하세요 . 저는 대구에서 루게릭병을 앓고 계시는 모친을 간병하는 젊은 청년입니
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> 다.늘 여기서 많은환자분들 이야기들 참고로 많이 하고 있습니다.제가 궁금한게 있어서요. 저
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> 희 모친께서는 루게릭진단2년정도 되셨으며 현재 다리를 못쓰시고 팔은 아주조금만움직이실
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> 수있는정도입니다. 식사 대소변은 잘보시고요.근데 처음 병원에서 확정받고 이병이 앞으로 안
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> 좋은 상황까지 가더라도 고통도 없고 몸이 아프지 않는다 하던데요.저희모친은 어깨 무릎등 관
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> 절이 다 아프시고 몸특정부위부분들에 많은 가려움증이 너무 심하세요. 너무 간지러서 피가 날
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> 지경이고 살이 피멍이 든것처럼 그렇습니다.누워계시부위는 아니고 가슴쪽 아랫배 발등 이런
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> 곳들이 그러시네요.다리부터 증상이 오셨는데 발가락을 땅쪽으로 미는 힘은 많이 있으신데 발
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> 가락을 위로 재끼는 힘이 전혀 없어요.이런것들 봤을때 제가 궁금한 부분 요약을 하고 자문을
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> 얻고 싶습니다.
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> 1.다른환자들분들도 모친처럼 가려움증이나 골절같은 아픔이 있는가요?
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> 2.다리는 살이 많이 빠져 얇으신데 못걸으시고 못움직이셔도 저희 모친처럼 발가락이나 다리
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> 에 힘이 많이 들어오나요?
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> 3.잘못움직이시는 모친을 늘 안마를 해드리는데 해드릴때마다 늘 하품을 지나칠정도로 쉴새
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> 없이 너무 많이 하십니다.또한 몸을 안마를 하면 등이나 팔다리 이 힘을주고 주물리면 지나칠
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> 정도로 계속 트림을 하십니다. 예전에 한방병원에 계실때 하품을 연속으로 하시다가 3번정
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> 도는 입이 안다물어지고 최대한 입을 하품크게 할때 처럼벌어져서 경련(?)같은걸 몇번이나 하
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> 셔서 응급실 가셔도선생님들은 지켜보고 이해가 잘안가신다고 그런채로 30분동안 눈물만 흘리
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> 면 입이 안닫혀 지신채로 계신적도 있었습니다. 이렇게 하품과 트림과, 하품할시 한번씩 입
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> 이 안닫혀져서 경련을 일으키 실수 있나요?
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> 4. 입안에 혀가 한번씩 말려 안쪽으로 옆으로 자기도 모르게 말려 들어가십니다. 이증상은 왜
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> 그럴까요.?
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> 질문은 이정도 입니다. 2년동안 지켜드리고 간병하면서 루게릭병이 이렇게 많은 부분들도 다
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> 아프고 힘들게 하는것인가 아니면 저희모친 유별나게 이런증상이 신지 참 궁금합니다. 선생님
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> 답변 기다리겠습니다.
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> 바쁘신데 긴글 읽어 주셔서 감사드립니다.
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