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작성자 학생 (210.♡.184.85) 작성일 10-05-18 20:14    조회 4,529회

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히라야마병을 가지고 있는 학생입니다

발견은 3년넘었고요
떨림은 10년정도 지났습니다
현재 26이고요

음... 보통 히라야마이면
증상이 멈칠때도 된것 같은데

진행된것이 느껴집니다

특히 하지 부분이 더 악화된것 같습니다
처음에는 근전도로 안잡혔는데
잡힌다고 나오고
제가 봐도 오른쪽 다리가 많이 약해지고
지하철에서 중심을 잘못잡고
오래 걸으면 발가락 사이가 그리고
살이 없어서 그런지 뼈가 아픈게 느껴 집니다


상지 하지 둘다 반응이 있다해도
기간이 3-4년 넘게 진행된것으로 봐서는
루게릭은 아니라는데
믿을만한 답변인지 궁금합니다

그 의사선생님께 메일을 보내도 답장이 없고요

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