ALS 진행속도
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작성자 채병덕 (203.♡.87.3) 작성일 11-01-06 16:17 조회 6,903회본문
상담실 목적이 실제 ALS환자들을 위한것이라,
일반 의심환자들의 문의는 자제하라고 하셨지만,
ALS확진을 위해서 1년이라는 시간이 필요하게 된다는것도 알게 되었습니다.
ALS확진을 위한 특별한 검진방법이 없다는것이 너무나 괴롭습니다.
저는 만38세의 나이로 지난주부터 시작된 ALS의 공포에 휩쌓여
미소도 사라지고, 모든 일과도 마비되었습니다.
제가 문의드리고 싶은것은 진행속도인데,
저는 7주전부터 속상연축이 종아리쪽에 발생되었고, 가끔 온몸에 물방울 터지는
느낌이 나고 있는 상태입니다.
병원은 지난달 29일, 그리고 오늘 이렇게 두군데를 갔고, 둘다 피검사와 근전도 검사를 진행하였습니다. 결과는 이상 없는것으로 나왔습니다만,,,
제가 질문드리고 싶은것은 만일 ALS라고 하면, 이렇게 빨리 진행되나요?
그제 1월4일 아침부터 갑짜기 전신근육, 특히 양쪽 허벅지, 종아리 옆등의 근육이 마치 등산이나 힘든 운동할때처럼 땡기면서 아픕니다. (심한 근육통 동반)
어제는 출근에 지장을 줄 정도였구요. 그전까지 멀쩡하다가..이렇게 될수가 있나요?
그렇게 땡기고 통증있고, 힘이없는 상태였고, 마침 오늘 근전도 검사를 했고. 검사 결과 정상이였습니다.
ALS환자분들 그리고 가족분들,,
치료를 위해서 노력하시는 의사분, 관련 종사자분들,,
모든이들에게 축복이 함께 하길 기원합니다.
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