여기다가 이런상담해도될런지 모르겠습니다..너무 답답해서.
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작성자 주인수 (202.♡.14.115) 작성일 11-01-02 12:26 조회 5,524회본문
>
>
> 안녕하세요..저는 사실 환우가족도..아닙니다..
> 하지만 루게릭병에 대해 관심을 많이 갖고 있고..카페란카페는 거의 가입하구..
> 여기 협회에까지 자주 방문하는 사람입니다..ㅜㅜ
> 아직결혼은 안했지만..저희 남자친구의 어머님께서 루게릭병으로 투병중이십니다.
> 처음에는 이병에대해 무지해서인지 크게 걱정은 안하고 있었습니다..
> 유전도 아니라는 얘기도 있구요..
> 그런데 이제 결혼을 할려고 하니 저희 부모님께서 많이 걱정을 하고 계십니다.
> 저도 희귀병은 유전이 오히려 잘안될거라고 생각했는데
> 아무래도 부모님입장은 그게 아닌가 봅니다..
> 남자친구한테 유전자 검사를 한번 해보라고 조심히 권유했는데..
> 만약 유전자 검사를 해서 이상염색체가 발견되지 않으면 정말 100%괜찮은건가요?
> 혹시나 만약 발견되었다구 하면 100%발병되는건 아니죠?
> 정말 속상합니다..ㅠㅠ
> 제가 궁금한것은..루게릭병의 유전성과..
> 그 유전자검사를 해서 아무이상이 없으면 괜찮은건지 아니면 발견된다면
> 어떻게되는건지..하는것입니다..
>
> 답변부탁드릴게요..ㅜㅜ
>
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