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루게릭이라는 진단을 받았는데요.

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작성자 양관호 (122.♡.43.73) 작성일 10-10-03 22:53    조회 4,481회

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안녕하세요 교수님.
저는 나이가 38세이고 성별은 남자이고 가족력은 없습니다.
처음에 오른쪽 발목을 삐어서 정형외과를 가서 치료를 받다가 오른쪽 다리의 근력은 삐어서 그렇다고 생각했는데 점차적으로 왼쪽다리도 근력이 약해지고 걷기가 힘들고 계단 올라가는게 힘들어서 신경과를 가보라고 해서 서울의 종합병원 신경과 외래진료를 받고 근전도 검사를 했는데 루게릭이라는 진단을 내리고 리루텍이라는 약을 처방하더군요.. 정말 충격이었고 루게릭은 확률상 걸리기 힘든 병으로 알고있는데 정말 믿기지가 않습니다. 지금도 왼쪽다리가 나아지지 않아서 걷기가 정상적일때보다 불편합니다.
다리 이외의 손, 팔이나 입, 발음등은 다 정상적입니다.
다른 종합병원의 루게릭 전문의 선생님한테 다시 검진을 받아볼려고 하지만 엄두가 나지 않네요.  근전도 검사결과 소견은 '신경전도 검사 및 근전도 검사상 wide spread denervation(bulbar, cervical, thoracic, lumbosacral region) 소견을 보여 motor neuron disease 를 시사하는 전기 생리학적인 이상 소견이 관찰됨' 이라고 되있는데 교수님 병원에서의 진단절차는 어떻게 하는지 궁금합니다. 근전도검사만으로 확진을 할수가 있나요.그리고 초기에는 비슷한 질병도 많을거 같은데요 교수님의 의견을 듣고 싶습니다.

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